Mum’s world grew smaller

12 Jul

On 30 June 2021 I posted:

I made a petal! It might not be the best petal, nor how I had first pictured it in my head. But it’s ok. And the slow stitching, the progress at snail’s pace is fine. Our worlds don’t always have to be accelerating, there’s a joy in slowing down and focusing in on what ever works for you.

Mum’s world grew smaller (in our eyes) over recent years, as she first gave up her car and became increasingly less mobile. But not once did this seem to diminish her, or reduce her enjoyment of what she still had. Instead of trying to take everything in, she seemed to focus on what she loved in her life … she has a remarkable ability to adapt to her circumstances and to make the very best of what she’s got. She still does this, despite her challenges.

Such treats for you today in the bonus pics! I found a sketch book with these beautiful horses, reminding me how she loved to draw horses all her life, from that moment as a child when she worked out how their legs joined their bodies. These horses are probably from about 10 years ago, maybe more, maybe less.

The last pic is of Mum on the right wearing a handsomely smocked frock, and her wee sister, Joyce, in the middle and her big sister, Jen, on the left. Such adorable girls. Such impressive women.

As ever, click on the link to find out more about supporting people with dementia. And their families and loved ones. It’s emotionally draining and we can only look after our nearest and dearest with the support of others. Thank you for being here.

On this day, my brother and I drove back up to Edinburgh for the night. We were booked in to visit a couple of care homes the following day. I had known nothing about care homes. Not a single thing other than what I’d read in the media … this had to change. I had been sent a book by June Andrews, which was my bible, full of useful information and reminders, for instance that we were not seeking a country house retreat, Mum’s needs were not for swag curtains and soft squishy sofas.

In the end the first home we planned to visit had to cancel the appointment at short notice as they had a covid outbreak. We had a lazy morning in the garden, with cups of coffee, my embroidery, and easy conversation.

Covid was still very much part of our lives, but that care home visit was the first time I took a Covid test. James and I were sat in a far away corner of the home, next to a wee table covered in all the testing paraphernalia and told to test ourselves. … but we were both totally rubbish and kept gagging, unable to get a sufficient sample, and in the end a carer had to come and shove the wee stick down our throats. That wait was more anxiety-making than I’d anticipated – I mean I’d seen so few people, other than in a hospital setting for weeks so it seemed unlikely that I’d caught Covid. But I was more than happy to have confirmation that I was ok. And I was.

The home felt modern and spacious and relaxed. There was a sense of calm around the place. It was also eye-wateringly expensive, but we had come to discover that this would be the case wherever Mum went, though perhaps Edinburgh Southside was more expensive than some other options. We had also had a ‘zoom tour’ of a home near where I live, and it was, I think, £600 per week cheaper than this one. Being cared for in your old age does not come cheap.

We came away from that visit feeling positive, thinking that if Mum made that her home she would be ok, and certainly better than how she was now, in hospital. As I noted last year, she is someone who still has the ability to make the most of what she has, she seems infinitely adaptable.

The home nearer me was our preferred option (and not just because of price) but they had no beds available – we would have to wait until someone died before Mum would be able to be considered for a room. We asked to go on the waiting list. We also looked at the paperwork for the Edinburgh home.. timing might mean that it was our only viable option, perhaps as a short term solution (though the idea of settling Mum in a home, and then moving her to another filled us with horror).

Our belief was still that the thing that would make the most difference to Mum’s wellbeing was our visits. Perhaps we have been too self-centred, and there is something else, but I’ve come back to this question, of what helps Mum to live her best life, over and over. And each time I come back to her spending time with her children. As her sight deteriorated, and her brain smooshed, as her communication came less easily and she could no longer follow even the simplest of stories it was harder to think how else she could fill her time. People always talk of music being The Thing for people with dementia – but Mum had never really been interested in music, she never had it on in the background. Music was Dad’s thing, Mum defined herself as un-musical. I inherited that gene, though I do like music on in the background – it’s like nice wallpaper to me though, rather than a thing I engage with.

Another thing we felt clear-headed about was that the culture of a home depended on the person in charge – a year later I still believe this to be true. But I also know that looking at care homes is a bit like going for job interviews and thinking that you know what it would be like working at the company. You don’t. You know what they want you to know.

Anyway, for some reason I have posted these slightly out of order… this original insta post came before The Operating Theatre. But I don’t think it really matters. I have come to have a much looser relationship with time, since Mum has lost her relationship with it altogether. It honestly does not matter if today is Monday or Thursday (unless I have specific things in the diary for one of those days).


If you want to catch up on how we got to this point, this series of posts starts here, with Taking Smock of the Situation.

One Response to “Mum’s world grew smaller”


  1. Taking Smock of the Situation | Shewolfinthevalley - July 18, 2022

    […] Mum’s world grew smaller […]


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